This past Halloween wasn't so much fun. Carson outgrew his costume in a 2 week span and I didn't figure it out until 5:30 pm Halloween night. He had fallen asleep in the car on the way home from my mom's house and instead of waking him up I just let him sleep so that I could get ready myself. I woke him up to put him in his costume and it didn't fit! The thing that sucked the most was that he was supposed to go as a dinosaur and I was a Jurassic Park employee. I even had make-up on to make it look like half of my face was tore up from a Dino scratch. So in a panic I threw him in a matching pair of camouflage sweats and told everyone he was an Army man. I didn't have time to change so I just went with it.
We met my sister in her old neighborhood and put Carson in his stroller since he can't walk very steady or long distances. It was bitter cold out. We had blankets and coats but I didn't have gloves for him because they were built into his other costume so we tried to put socks on his hands knowing he didn't have the dexterity to take them off but eventually he figured out how to get them off with his teeth. It was such a disaster. He kept fighting to get out of his stroller so I was excited and thought he wanted to go door to door with his sister but when we got to the first house he just wanted to go inside where it was warm.
We met my sister in her old neighborhood and put Carson in his stroller since he can't walk very steady or long distances. It was bitter cold out. We had blankets and coats but I didn't have gloves for him because they were built into his other costume so we tried to put socks on his hands knowing he didn't have the dexterity to take them off but eventually he figured out how to get them off with his teeth. It was such a disaster. He kept fighting to get out of his stroller so I was excited and thought he wanted to go door to door with his sister but when we got to the first house he just wanted to go inside where it was warm.
We ended up having Mike take him to my mom's house since it was about 2 miles away and hang out there while my sister and I took Baylee and her daughter around the neighborhood. She then drove us to our mom's house when we were done because Mike had taken the car.
Carson didn't care that he didn't get to go trick-or-treating, but I did. I want so desperately for him to have a 'normal' childhood, to experience the same things that his sister does and not miss out on even the littlest of things. But that's not how it works.
I just bought front row tickets to go see the Cincinnati Ballet's "The Nutcracker" as a surprise for Baylee since she takes ballet lessons. Guess how many tickets I bought? Two. One for me and one for her. Of course price was a factor. If I had bought 4 we would be in the loge for sure. BUT the real reason I only bought 2 is because I'm afraid to take Carson. A few months back a friend of mine (who I met on Facebook in a closed group for our families with children with the same diagnosis) bought tickets to see the Broadway production of Disney's Beauty and the Beast for herself, her two daughters (one of which is a 15q kid) and her daughter's nurse. They were literally THROWN OUT of the performance because her daughter was being 'too loud'. If she is anything like Carson I'm sure she was squealing and cooing like he does when he is happy. Apparently the other patrons didn't complain about the noise it was just a decision that the venue made because they have standards to uphold.
She posted on Facebook before they left pictures of how excited they all were to be going and then a couple of hours later she posts how embarrassed she was and what had happened. Of course we all cried discrimination. It was on the local news in Boston and everything but they stood firm. They claimed they offered for them to stand in the lobby and watch the performance on a TV!!! Unbelievable. The little girl is in a wheelchair AND has a hearing loss like Carson. No way she would be able to hear a TV in the lobby. It's just so unfair that so many people feel like our children should be locked away and never seen or heard, their rights don't matter because people assume that they don't think or feel just like everyone else. Like the big uproar about Disney's new park policies about the handicapped 'fast pass' but that's another story.
Halloween is in 2 days. I'm prepared this time. We tried on his costume yesterday - he's going as an astronaut - and it fits! It's not going to be as cold this year so that's a plus but it is going to rain. We have umbrellas or I'm thinking of making his stroller a rocket ship....
She posted on Facebook before they left pictures of how excited they all were to be going and then a couple of hours later she posts how embarrassed she was and what had happened. Of course we all cried discrimination. It was on the local news in Boston and everything but they stood firm. They claimed they offered for them to stand in the lobby and watch the performance on a TV!!! Unbelievable. The little girl is in a wheelchair AND has a hearing loss like Carson. No way she would be able to hear a TV in the lobby. It's just so unfair that so many people feel like our children should be locked away and never seen or heard, their rights don't matter because people assume that they don't think or feel just like everyone else. Like the big uproar about Disney's new park policies about the handicapped 'fast pass' but that's another story.
Halloween is in 2 days. I'm prepared this time. We tried on his costume yesterday - he's going as an astronaut - and it fits! It's not going to be as cold this year so that's a plus but it is going to rain. We have umbrellas or I'm thinking of making his stroller a rocket ship....
XX
No comments:
Post a Comment