I can't believe that it's almost been a year since I've posted. So many things have happened. Carson and I finished our first year of homeschooling. We had his special education preschool teacher look over his portfolio and sent a letter to the board of education with our outline for next year and are impatiently awaiting a reply to see if we have been okayed to continue for 1st grade. This year his written vocabulary doubled which is a great thing for him. He has a few new signs: cat, apple, drink and the one I'm most proud of is please. He will hand me his cup, sign 'drink' and I will ask, "What do you say?" and he will sign 'please'. That is a feeling that I can't describe except that it makes me feel like I made the right choice to keep him home with me this past year.
We have been working hard trying to keep his blood sugar levels in check. We had a rough few months where nothing seemed to be working and he was riding the high-low roller coaster which made him feel like complete crap. It's not anything that I was doing wrong per-se. Diabetes is really hard to control and what works one week (or day) sometimes doesn't work the next. His last A1C was 7.9 which isn't too bad for his age. They want it under 8 so we just squeaked that in. We go back in about a month to see if it has gotten better.
Carson had his 6 month check-up with his dentist. Mike took the day off and came with me which was a good thing because they found a cavity in one of his molars. Instead of making us come back for another appointment they went ahead and took care of it right then so Mike wouldn't have to take another day off of work. It took 2 of us to hold down his body while 2 of the dentist's assistants had to help keep his head still. After a lot of screaming from Carson and sweating from the rest of us thankfully they were able to get the tooth filled quickly and we were on our way. We go back in September and I'm really hoping that this time will be a lot easier.
We have had a lot more children diagnosed with the microdeletion. Where 2 years ago there were probably 20 diagnosed, I bet today there are 40 or 50. That is still a very small number considering that is worldwide! It is nice to be able to bounce questions off of other parents but it is still so lonely and frustrating. One parent today actually used the "R word" to describe our children. I was so mad that I was fuming. It was an honest mistake in the sense that she is not from America and doesn't speak English so her translation wasn't using the best words for a lot of things. Luckily someone else called her out on it before I did because I was trying my hardest to keep my mouth shut because I know I can speak without thinking first at times.
Carson now is almost 7 so cognitively I would say that he is about 3. It always seems to be about half his actual age. He is definitely doing things that a 3 year old does, good and bad. He is still putting anything and everything into his mouth which is exhausting trying to keep up with him. He breaks things because he doesn't understand what he is doing. At this point I don't have a set of blinds on any of my windows that aren't broken at the bottom and have missing or broken slats going up. He has pulled down all but 1 set of my long curtains (it doesn't take much anyway but still.). If he finds a writing instrument he will write on anything he finds including the walls. I know this makes me sound like I'm not watching him close enough but I'm here during the day alone with him and at some point I do have to pee and that little guy works fast ;) Maybe I should just be happy that he's strong enough now to be able to make his way through the house on his own or that he understands how to use a pencil or pen. There's always a bright side I guess..
Carson's sister just turned 10 a couple weekends ago and we made sure to celebrate big. We had a party at my Dad's house and I took her to see Inside Out with a group of friends the next day while Mike took the day off to stay with Carson. I always try to make special time for her because I feel like she doesn't get enough 1 on 1 attention from me. I also took her to the local animal shelter and let her pick out a kitten. At this point we practically have a zoo so one more wasn't going to be a big deal. When we brought him home and he was finally introduced to the rest of the motley crew I was so surprised to see Carson take such an interest in him. Carson isn't one to just sit and pet an animal, ( Chalk that up to his autistic tendencies ) but he actually likes to sit and pet the kitten. He will even love on him occasionally. It's another one of those things that really makes you sit back and realize how much love and tenderness this little guy has in his body. While he absolutely hates our dogs he will sit and pet our crazy wild new kitty. I just hope that he keeps liking him once he gets bigger...
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